Latest News


Neonatal Alloimmune Thrombocytopenia (NAIT) Registry reaches 100 cases

Our 100th patient was enrolled in February 2016 - a huge milestone for this rare but important condition. Mothers and babies may receive intravenous immunoglobulin to try to prevent or treat this condition where maternal antibodies cross the placenta and cause low platelets (and potential for serious bleeding) in the foetus or neonate. Specially matched intrauterine or postnatal platelet transfusions may also be required.

The NAIT registry has 34 approved sites across Australia and 26 have contributed cases. We really appreciate having such a dedicated steering committee and team of local investigators on board and thank everyone for ongoing support and contributions to the registry.
We encourage you to continue entering all confirmed cases of NAIT into the registry.
If your hospital is interested in participating or you would like further information please contact us at or on 1800 811 326.


Aplastic Anaemia Registry Annual Report 2015

The Aplastic Anaemia Registry has developed and released its first annual report for 2015. This report describes some of the preliminary information the registry has been able to collect and the activates of the registry over the last couple of years. The report can be found here

TTP/TMA presentations at HAA1 in October 2015

(1Haematology Society of Australia and New Zealand, the Australian & New Zealand Society of Blood Transfusion, and the Australasian Society of Thrombosis and Haemostasis)

Shlomo Cohney (TTP/TMA Registry Steering Committee Chair) and Piers Blombery (TTP/TMA Registry Steering Committee Member) both presented well received invited presentations at HAA in October 2015. Shlomo’s talk, entitled “Is the TTP/TMA National Registry providing useful data?” provided a summary of the TTP/TMA Registry to date and the avenues of research stemming from the registry data now available for further scrutiny. Piers discussed the difficulties surrounding the diagnosis of both TTP and other TMA’s and the developing knowledge around more targeted treatments for patients in his talk entitled “TTP/HUS – a continuing puzzle”. Please click here to see summary slides of these presentations.

Funds awarded to the Aplastic Anaemia Registry by Maddie Riewoldt's Vision

The Aplastic Anaemia Registry (AAR) is pleased to announce it has become the first recipient of a research grant from the newly formed Maddie Riewoldt's Vision (MRV). MRV was established by the Riewoldt family in honour of Maddie, to both raise the public’s awareness of aplastic anaemia and other bone marrow failure syndromes, and to also raise some much-needed funds to support research into these rare but important disorders.

The AAR will receive an initial grant of $80,000, with the possibility of further funding in the future. Associate Professor Erica Wood, Consultant Haematologist and Head of the Transfusion Research Unit, said the Maddie Riewoldt’s Vision (MRV) grant will contribute significantly to the valuable work of the AAR.

“We’re so grateful to Maddie Riewoldt’s Vision for their efforts in raising awareness and essential funds to support our work,” Associate Professor Wood said.
“We’re excited to be the first recipients of funding raised from the community. This support will make all the difference in keeping the registry open and active, and allowing us to continue our research into the causes and best treatments for aplastic anaemia.”

If you would like more information about Maddie and the foundation in her name, please visit the foundation website:

TORC Seminar 2015 - Transfusion Trials and Tribulations - Presentations and video now available!


The TORC 7th Annual Seminar was held on Friday 11th September. Presentations and video recordings of the day are available here.

Inaugural National TTP Forum

Thank you for a successful inaugural National TTP Forum!
The inaugural National TTP (thrombotic thrombocytopenic purpura) Forum was held in Melbourne on 15 August 2015, hosted by the national TTP Registry.


Presentations and discussion covered all aspects of diagnosis and management of TTP and other thrombotic microangiopathies, including updates on national registry data.

Participants came around Australia and even New York!  Thank you for your contributions.

We really hope everyone enjoyed the TTP Forum and have provided the presentations below.


TTP Management: What is the evidence? Chris Ward
The pathogenesis of TTP and tests associated with its diagnosis. Kent Chapman
Status report of the TTP/TMA Registry. Leah Kivivali
New therapies for TTP. Jake Shortt
Apheresis in TTP management: Evidence & practicalities. Claire Dowsing
Transfusion controversies in thrombotic thrombocytopenic purpura. Philip Crispin
Diagnosis and managements of TMAs in pregnancy. Bhadran Bose
TMA and the aHUS kidney update. Nikky Isbel
Optimising outcomes in rare diseases: Models of care and resource utilisation. Jeff Szer
Use of eculizumab in a paediatric allo-transplant recipient with TMA. Rachel Conyers
Two challenging TTP cases at the Austin. Lucy Fox